We would like to introduce you to an incredibly special boy, 14-year-old Kyle. As his mom does not have a medical aid, she attended the local clinic during her pregnancy, but she did not have a scan done. When Kyle was born the doctors noted some abnormalities but was unable to make a diagnosis. By the time he was 6 months old, Kyle and his mom made 4 trips to Red Cross Hospital in Cape Town in the hope of getting some answers. Kyle was diagnosed with Carpenter Syndrome.
Carpenter syndrome is a condition characterized by the premature fusion of certain skull bones, abnormalities of the fingers and toes, and other developmental problems. Craniosynostosis prevents the skull from growing normally, frequently giving the head a pointed appearance.
As a result of his physical appearance Kyle has been the victim of ridicule and bullying from an incredibly young age, yet he is a gentle, friendly young boy with a wonderful sense of humour.
With the help of his mom and grandmother he overcomes the challenges, both physical and emotional, with enthusiasm.
There is no cure for Carpenter Syndrome. Kyle needs to visit the Genetic Clinic at Red Cross Hospital 4 times a year for a specialist review. During these visits brain scans are done to monitor the condition. As he grows older his condition will progressively deteriorate.
Kyle has been traveling with Wings & Wishes for the past 13 years. Thus far, he completed 69 trips!
